Imagine you are nine years old and helping unpack groceries with your mother. In an instant everything changes. Your mom drops what she is holding and is now frozen on the ground. Her left side is paralyzed and there is nothing you can do except sit with her and wait for it to be over. You tell yourself it will be over soon, that the doctors will find a cure soon. This wasn’t the first attack and it wouldn’t be the last. She has Multiple Sclerosis, but nobody would know that until months later. At that moment the attacks were random and confused doctors. Even after she was diagnosed, doctors had no cure, only treatments that we prayed would help. That was my mother and my family. The summer of 2012 was scary and there was no cure to help her. …show more content…
Let me start off by explaining what MS is. Multiple Sclerosis is when, for reasons scientists are not yet sure of, a person’s immune system attacks the myelin that covers and protects the spinal cord and nerve fibers in your brain. After the myelin is damaged, the nerve fibers then are attacked by the immune system as well. This causes nerve damage, fatigue, vision loss, poor balance, and more unpleasant side effects. Multiple Sclerosis itself isn’t necessarily the cause of death, however, it 's the complications of MS that take a great toll on one’s health. Pulmonary Involvement, Severe Infections, Sepsis, Aspiration Pneumonia, and suicide are some examples of death causing complications. Overall, patients younger than 40 are 3.7 times the average risk of an early death. Those who are 40-59 years old have 2.9 times the …show more content…
Through studying MS, researchers are finding ways to better protect our Myelin against attacks such as through a process called remyelination. Recent studies have led many scientists to believe that CD8+ T cells, whose job is to protect good cells and kill dangerous ones, play a role in the myelin damage. However, more research is needed to learn more about MS and what causes it. Not all studies agree that DD8+ cells cause the attacks, but instead some think that they tone down the attacks. Overall, there is many answers for scientists to find. Through learning how MS happens we may be able to learn how to stop it and return the freedom and health of those
As of 2013, the number of people with MS was estimated to be over 2.3 million worldwide. ( atlas 2013) Most of the non-traumatic disabilities in young adults are caused by MS [1]. It is considered that an interaction of genetic factors, environmental predisposition, and abnormal immune responses can be the chief causes of MS, But the exact etiology of MS is still in question [2]. MS has been greatly studied within the recent years, but a great number of clinical challenges still remain in regard to diagnosis, prognosis, and treatment.[6]
While her doctor will clean her open cut wounds where her arm used to be, there would be neither anesthesia nor antibiotics to help with the pain. The emotional toll seemed to be worst because she would see dying bodies come and go every single day. She also talks
In “Am I MS?” Miriamne Ara Krummel talks about her personal journey she endured dealing with multiple sclerosis. Krummel further explains at the end how she was finally able to accept her diagnosis and to embrace it. She finds that it’s important to be open about the disease. She believes that, “it might be helpful if more people would talk about death and dying as an intrinsic part of life” (76-77).When she was first diagnosed, she had a difficult time coping with MS.
Multiple Sclerosis is when the immune system attacks the nervous system. Higgins has multiple lesions on her brain and spine and she relapses and remits which means she gets sick and then better but she never restores complete function of her brain and body. To her children, MS means “Many Scars” because she has scars on her brain and spine. Harper and Hudson are too little to understand Multiple Sclerosis but they understand that sometimes Higgins is sick and in pain.
Blair describes the frustration of self-medicating and not receiving the support she needed from others who dismissed her pain as "normal". She talks about how she suffered in silence and felt alone. This resonated with me and reminded me of my own struggles with invisible illnesses. Like Blair, I've been told by others that my pain is "all in my head" and it's been a struggle to get the support I need. Blair's story also highlights the stigma that can come with a diagnosis.
She understands that “ the self-loathing she feels is neither physical nor intellectually substantial. What she hates is not herself but a disease.” Mairs is trying to rise above the self-pity she developed and wants to be free of it. Mairs explains a journey of realization and stops defining herself with MS, but “ she was satisfied with her adjustment.
When a patient is told they have a disease, they are shocked. Some patients worry that they may die, and others feel numb or confused about it. They may have a hard time realizing that their disease could be fatal. “When he asked if she was okay, her eyes welled with tears and she said, “Like I’m always telling my brothers, if you gonna go into history, you can’t do it with a hate attitude. You got to remember, times was different” (Skloot 276).
What is it like to have ALS or a CTE? Either a progressive neurological disease that attacks your motor skills or one that attacks the cognitive parts of the brain. Each one has its own particular attack strategy. On one hand the body is rendered completely motionless while being completely conscious of the outside environment. On the other, the body stays unharmed while it slowly loses the mind, both are equally devastating.
A. Speech therapies and social skill training can allow individuals with Autism to manage the degree the effects of Autism has on them. 1. Teaching young toddlers basic skills like attention and perception can also help diminish the extent to which autism effects an individual because the brain is most subject to change before the age of four. 2. Individuals with Autism can also benefit from learning how to cope with their anxiety, the younger the diagnosis the better the outcome of the therapies.
Imagine for a moment if you will. A woman in her 50’s sitting in a recliner on a hot July day with the windows closed, blinds drawn with the heat on. She is dressed in layers, covered in blankets. She is freezing in July. She has her sister put a few ice chips in her mouth so they will melt slowly.
Imagine being unable to walk, unable to speak, unable to move and unable to breathe. Imagine being in a state of complete paralysis where the only thing that keeps on functioning is your brain, and you live chained to a machine doctors call life support. Imagine being told that you have an incurable disease that will inevitably kill you. Maybe next month. Maybe next year.
It will very slowly shut down each individual part of you body until you die. For this reason the person that is diagnosed with this type of disease is forced to take life slow and be very
We, as a species have a hard time admitting when we are wrong. How do you live with something that has no cure? Sure, they have medication and counseling that can help subdue the problem for a short time being, but, it’s always there, haunting the corners of your mind. Attention Deficit Disorder, or ADD is a somewhat commonly known. People sort of know what it is, but that doesn’t mean that they completely understand what it is.
We waited day after day praying she would make it, undergoing surgeries after surgeries, different tests and needles being poked into her. My family thought it was time to let her go. Then one day something changed. She was able to breathe on her own. It was slow but she was making progress.
An incurable disease is a disorder or function in the body that can’t be cured (Dictionary). Cancer patients, paralyzed patients and patients who have other incurable disease have to suffer in ways others would not understand and for that reason some choose to die with dignity using euthanasia. With Amyotrophic Lateral Sclerosis (A.L.S), you have a choice about when to stop treatment, letting nature take its course explains Dr. Linda Ganzini, a professor of psychiatry at Oregon Health and Science University in Portland, who has studied patients making end-of-life decisions (Estrin and Schwartz). With some incurable diseases sometimes the only option a patient has left is letting nature take its course. By letting nature take over patient's lose their quality of life and end up suffering more.